I’ve joined a few Lichen Sclerosis groups and found them very interesting. One of the groups has a fantastic book about Lichen Sclerosis and it’s written by sufferers who understand what we are going through. I’m just over midway through the book and feeling hopeful now about it. I understand it can’t be cured, but can be put in remission. The book is called Help, I have Lichen Sclerosis’
It’s a horrible disease and probably apart from Triginimal Neuralgia the worse one I’ve got in the way of pain. The way I describe the pain, is its like someone has dragged you public height through broken bits of glass and then rubbed it in for extra pain. The there is the itchiness, the itchiness is like you’ve had thousands of red ants 🐜 on your nether regions and it drives you mad. Stops you sleeping, even functioning through the day. Today I’m in a dress and going commando, thankfully the dress is long because I’m sitting down with leg wide apart. It is the most comfortable I’ve been for 3 days.
My appointment in Novemember has been brought forward to June, after I found a lump, thankfully I think the lump was batholomen cyst, because its hardly there now.
Living with autoimmune diseases and Lichen Sclerosis 
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